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beatingcowdens

Day: April 4, 2014

Honored!

Published on April 4, 2014April 4, 2014 by beatingcowdens4 Comments

 

Cowden's Syndrome

The video is a little tough at points – but you get the idea.

Side by side with my girl!!  LOVE THIS KID!

Categories Cowden's•Tags beating cowden's, Borough President Oddo, Cowden syndrome, Cowden's Syndrome, Global Genes Project, honor, NY1, rare disease

Looking Back…

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  • Check in...
    Check in...
  • There are just no words
    There are just no words
  • The Storms of Life
    The Storms of Life
  • Thankful for... that first piece of pie!
    Thankful for... that first piece of pie!
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    Freedom IS NOT Free!
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  • Almost Perfect... works for me!
    Almost Perfect... works for me!
  • It was NOT the Cowden's... this time!
    It was NOT the Cowden's... this time!
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    Building Bridges...
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    It's possible...

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