My heart and soul. My circle of strength.
A few weeks ago Felix mentioned he might like to have a denim ribbon pendant to wear.
They are modeled off the Global Genes Project logo, “Hope it’s in our genes!”
He wanted to be able to show his support for Meghan and I all the time.
So, we had another one made and I gave it to him for our anniversary.
I didn’t imagine the effect it would have on me.
What a magical thing to see the ones you love most joined with a symbol of support.
Symbols are just symbols I know – but what they symbolize can still be powerful.
Felix gives us the motivation, the strength, and the courage to say “I can.”
He makes us laugh. He holds our hands.
He is as much a part of this Cowden’s Syndrome journey as we are.
We are three but we are one.
Now, near or far we remain connected.
There are no “superpowers” in these denim ribbons…
Well, unless you count LOVE, GRATITUDE, COURAGE, STRENGTH, and HOPE!
beatingcowdens 
Thank you so much for sharing your daughter and your journey. I am reallyour movedette by all your strength and courage. My 3 month old daughter was dx with incontinentia pigmenti last month and we are really struggling with it. I saw that necklace you had made and a post about it being available through the global genes project but can’t find it anywhere. Do they still make them? I would love a set for my family. What a wonderful idea!
I am glad you found us. Keep checking at Globalgenes.org. I suspect they will be for sale in their store this fall. All the best to your family!