Sometimes you read a story that just needs to be retold.
This link will take you to the world of a young lady I “met” through my blog and have come to respect.
She does not share my same genetic mutation, hers is the BRA-CA gene, and mine is PTEN. But the breast cancer risks are ridiculous for both, and she bravely as a young twenty something, underwent a prophylactic bilateral mastectomy.
In a rare request, she is asking for help, and I certainly feel compelled to share her reasonable request.
It is through social media that I have come to find others “like us,” to share mine and Meghan‘s story of our Cowden’s Syndrome battle. Without that outlet, I would feel incredibly lonely.
Please take a moment to read Rachel’s story, and another to respond to her request.
This world of genetic predisposition is terrifying, and should not be traveled alone.
Lori
My mom is a member of the Los Angeles Pink Dragons, a dragon boat racing team of breast cancer survivors. She has been paddling with the Pinks for about a year now. Last night, one of her teammates passed away after a long battle with breast cancer. Frances was my mom’s benchmate on the boat. On the Pink Dragons’ Facebook page, Mom writes: “Frances, your courage and determination was an inspiration to all of us. Your teammates will miss you so. Rest in peace, dear friend.”
Then scrolling down through my Facebook newsfeed, I was accosted by another heartwrenching message, this one from Bright Pink founder Lindsay Avner: “My heart breaks upon learning of the loss of Rebecca, a member of the Bright Pink Vermont family, who lost her battle to breast cancer at only 29 years old.”
29 years old.
Frances and Rebecca’s deaths are…
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beatingcowdens 
Thank you so much for reblogging this!