“You are Special – You are 1 in 200,000”

As the trip down Memory Lane continues… not much has changed. I guess this is part of Cowden’s being “forever.” This is from May 14, 2012.

beatingcowdens's avatarbeatingcowdens

My daughter gave me a button for Mother’s Day.  She made it in school.  It says “You are Special” on the front, and then on the back it says “You are 1 in 200,000.”  Decorated with the obligatory hearts, she had made her point. Even in school, creating this “fun” assignment – she remembers.  I can call it “unique,” “special,” and all sorts of motherly words.  But she knows what it means.  It means different.

She and I may be the same – in many ways, but not her friends.  She can not ask her friends if their breasts hurt as they begin to develop at 8… because in reality she is different in this too.  At 8 and a half she stands just shy of 4 foot 9.  She weighs 73 pounds and wears a woman’s size 5.5 shoe.  All sorts of wild things are happening to her body…

View original post 484 more words

History – Where it all began

Yep.  That’s what it is.  It’s history.  The story of our lives for the past year.  It started in a small blog I shared only with a few friends.  It blossomed into a WordPress blog with 50 followers, and a Facebook group with over 225.

I am humbled really – that anyone is even interested in our story.

I am grateful and excited for what we are doing to raise awareness of rare diseases like our Cowden’s Syndrome.

I wrote my very first blog post on May 9th of 2012.

Very few of you were with me then – but this is where it all began.

For the next two weeks I plan to “replay” some of my favorite/most informative blogs from the early days.

Hope my nostalgia doesn’t drive anyone away!

CLICK ON THE LINK BELOW FOR  A TRIP BACK TO MAY OF 2012!

https://beatingcowdens.com/2012/05/09/