4 thoughts on “Jeans for Rare Genes – Local News Coverage”
STAHHHHHHHHHHHHHHHHHHHHP! Did you get this sent to Carrie at Global Genes yet? HOLY COW! I cannot believe this? This looked like the set up at the Patient Summit! I am so floored by both of you. Really and truly. When I have money I am going to fly out to your next one! WAY TO GO!
beatingcowdens 
STAHHHHHHHHHHHHHHHHHHHHP! Did you get this sent to Carrie at Global Genes yet? HOLY COW! I cannot believe this? This looked like the set up at the Patient Summit! I am so floored by both of you. Really and truly. When I have money I am going to fly out to your next one! WAY TO GO!
Beautiful. Your event looked beautiful. Lots of people you raised money and got the word out. Liked the tee shirts too.
Hi thanks for postting this