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Day: February 28, 2017

Rare Disease Day Video 2016

Published on February 28, 2017February 28, 2017 by beatingcowdensLeave a comment

In honor of #WRDD2017 I’m sharing Meghan’s video from 2016. So much of our lives with this rare disease is lived behind the scenes. Sometimes it’s an important part of advocacy to let it be seen, heard, and felt.

Music- “Pressure” by Billy Joel

“Corner of the Sky”- Pippin soundtrack

Categories Cowden's, Daily struggles, My girl•Tags PTEN, Rare Disease Day, WRDD2017

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    Thankful for... that first piece of pie!
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    Almost Perfect... works for me!
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