Perfectly Imperfect- Orchids and Life Lessons

I don’t remember when I got the first orchid. I don’t remember who gave it to me or even what color it was. I remember it was after looking through droves of flower photos from my father’s images after he passed away in December of 2013.

Dad loved to take pictures. And he saw things in ways other people didn’t. For better or worse depending on your perspective. My relationship with him took many different forms during the 4 decades we shared this earth. Truthfully for most of the first 3 decades he wasn’t part of my life really at all. That last decade though, where lots of things got sorted out, well, that decade was pretty magical and I am forever grateful for it.

It wasn’t long after the orchid landed in my front window that it became evident the window was meant for these plants. It thrived, and held onto its bloom for months. I was captivated.

Not being too easy to buy gifts for, the next year or so was filled with new orchids, as I fumbled my way though learning how to best help them grow.

I poked around the internet to get tips on how to grow orchids. These people were intense. Installing lights to keep the leaves straight, creating a drainage system, tracking the growth of specific flowers.

I was out. There could be nothing in my life meant to remind me of beauty that took so much work.

I was officially winging it.

I felt more comfortable immediately.

I was at the time the mom of a recently diagnosed tween with a rare disease that I also shared. We were learning and figuring and trying to stay afloat. I was trying to learn my new body after my bilateral mastectomy and the shove into menopause from my full hysterectomy in 2012. My grandparents were suddenly aging. My relationship with my church was falling apart. I kept smiling, and telling everyone we had it all under control. But we didn’t. I was winging my whole life.

Somehow though I was interested enough in the orchids to keep them alive and happy. They became a hobby, and a reminder that there is beauty in everything if we know how to look. My orchids helped me with perspective.

They helped me appreciate the beauty of creation. They helped me when I was alone after a foot injury in 2019 and when the world turned upside down with the pandemic in 2020.

I came to spend a lot of time looking out the front window, fussing with leaves and stems, and just admiring the tenacity of these beautiful plants. I think the fact that I just let them be and grow their own way has been the most important lesson of all.

But, there are countless other things these plants have taught me.

This one was supposed to be dead from “root rot.” Plants don’t survive once the rot hits the main root. Someone forgot to tell the plant. After a few years of nurturing it bloomed this month. Patience. Determination. Don’t give up. Trust your instincts.

And this one, such beautiful flowers. And if you only glance at it that is all you will see.

But it is struggling. Its leaves show signs of distress. I tried repotting it. I tried leaving it alone. Some days I just stand by this one and wonder what it’s going through. By being present and attentive, I’m hoping one day I will be able to give it the support it needs. We may look like we have it all together on the outside, but it may be taking everything we have to produce that smile. Look at each other. See people. Really see them. And don’t give up when they are struggling. Keep showing up. You may be the thing keeping them going.

And this one… it looks different than the others because despite my best efforts, it grows at an angle. It bothered me for a brief minute and I tried to correct it. Then I noticed the rich sticky sap on its stem. This is a happy plant. It doesn’t care about looking like the others. It had strong roots and is thriving. This one inspires me to be more like it. Even though it has no flowers right now, it makes me smile every day. Put your best self out into the world and that may be enough to bring joy to someone who needs it.

If you look closely here you will see that there are two plants in this pot. One has long since finished blooming, it looked nothing like the other. One is holding onto its purple flowers for quite some time. Two totally different plants in exactly the same pot. Two different potting mediums shoved together, and yet both are thriving. They figured out a way to do more than coexist. They figured out a way that, despite their differences they could both have what they need. Imagine if we took more time to care for those close to us, with different needs, instead of choking them out because we need the pot all for ourselves?

One plant – two spikes. From the same root they grew on their own, yet they’re able to have their independent spikes without hurting each other. So much we can learn.

This one has the longest spike. I have no idea what its flowers will look like, but I will be there to celebrate alongside it when it is finished with its climb.

Once a week, usually on a Sunday morning while I listen to www.churchunleashedtv.com I bring them all from the front window into the kitchen. Most are watered just by soaking them. (I use mostly bark as a potting medium.) When they are soaking I often stop to listen and I can hear them, happily absorbing the water into their roots. I hear them, and I am grateful for the ability to care for them. I am grateful for the reminder to listen. Really listen, so that I can truly hear.

And I peak down at this little guy that has been through a lot. I am not sure what its future holds, but know that both of us have tried out best. And watching its little roots nourished by the water gives my soul some peace.

Any orchid die hards would probably wince at the state of some of these plants. But, I have learned that they are perfect just the way they are and I have worked to meet them where they are, and accept them where they are. Whenever I can, I give them what they need to thrive or to just survive. They are perfectly imperfect, and immersed in the grace so freely given to me. Most days it’s hard to tell who needs who. I’ve grown quite attached to these little life lessons, delivered in the form of beautiful flowers.

I’m getting older. I am tried. I am less social. I am sad a great deal. I do not know how to fix the unsettled feelings in my heart.

My body is beat up from 5 decades of PTEN life. My heart hurts from the 2 decades my daughter has endured. This life is hard. People tire of hearing that but it is hard. It is with you 24/7 and it Iiterally lives in every cell of your body.

The cycle of surgery, recovery, scan, is endless.

Most days I try my best to focus on something that keeps peace in my soul.

Some days that is harder than others. But, every day we remain…

Love, Mom

Before Meghan left for college last August I worked to think of creative things to send with her. One of the things I decided on was a playlist. Sure, we have some overlapping music tastes, but it was not to be about that. It was for songs that she would be able to listen to and imagine me either telling her or singing alongside her. Since I am a TERRIBLE singer, a playlist was definitely the most kind and efficient option.

I have listened to this playlist “Love, Mom” on Spotify about a million times. The link is here-https://open.spotify.com/playlist/2O76yoB451R0Fkz8flFtvm?si=bb3117761b0a4fca

I DO NOT OWN THE RIGHTS TO ANY OF THESE SONGS!

I listened to every song over and over before declaring it a fit. Then, I listened to the playlist, first in order, then on shuffle for weeks before I “gave” it to her. We have added songs through the months and even taken one or two out. But now it seems like a chronology. Some songs that will be life advice forever, and some that were epically important as she settled away from home for the first time

  1. The Gambler” Kenny Rogers

“You’ve got to know when to hold ’em
Know when to fold ’em
Know when to walk away
And know when to run
You never count your money
When you’re sittin’ at the table
There’ll be time enough for countin’
When the dealin’s done…

2. “Humble and Kind” Tim McGraw

“Don’t take for granted the love this life gives you
When you get where you’re going don’t forget turn back around
And help the next one in line
Always stay humble and kind…”

3. “I Hope You Dance” LeeAnn Womack

“…I hope you never fear those mountains in the distance,
Never settle for the path of least resistance,
Livin’ might mean takin’ chances, but they’re worth takin’,
Lovin’ might be a mistake, but it’s worth m
akin’…”

4. “Here Comes the Sun” The Beatles

“…Little darling, I feel that ice is slowly melting
Little darling, it seems like years since it’s been clear

Here comes the sun do, do, do
Here comes the sun
And I say it’s all right…”

5. “My Shot” Lin-Manuel Miranda (Hamilton)


“…I’m a diamond in the rough, a shiny piece of coal
Tryin’ to reach my goal, my power of speech: unimpeachable
Only nineteen, but my mind is older
These New York City streets getting colder, I shoulder
Ev’ry burden, ev’ry disadvantage
I have learned to manage…”

6. “I’ll Stand by You” Pretenders

“...I’ll stand by you
Take me in, into your darkest hour
And I’ll never desert you
I’ll stand by you
I’ll stand by you…”

7. “Have it All” Jason Mraz

“…May you be as fascinating as a slap bracelet
May you keep the chaos and the clutter off your desk
May you have unquestionable health and less stress
Having no possessions though immeasurable wealth
May you get a gold star on your next test
May your educated guesses always be correct
And may you win prizes shining like diamonds
May you really own it each moment to the next

And may the best of your todays be the worst of your tomorrows
And may the road less paved be the road that you follow…”

8. “How They Remember You” Rascal Flatts

“…You’re gonna leave a legacy, no matter what you do
It ain’t a question of if they will
It’s how they remember youDid you stand or did you fall?
Build a bridge or build a wall
Hide your love or give it all
What did you do?
What did you do?Did you make ’em laugh or make ’em cry?
Did you quit or did you try?
Live your dreams or let ’em die
What did you choose?
What did you choose?
When it all comes down
It ain’t if, it’s how they remember you…”

9. “Best Day of My Life” American Authors

“I had a dream so big and loud
I jumped so high I touched the clouds
Wo-o-o-o-o-oh, wo-o-o-o-o-oh
I stretched my hands out to the sky
We danced with monsters through the night
Wo-o-o-o-o-oh, wo-o-o-o-o-ohI’m never gonna look back
Woah, never gonna give it up
No, please don’t wake me now…”

10. “Rise Up” Andra Day

“…All we need, all we need is hope
And for that we have each other
And for that we have each other
And we will rise
We will rise
We’ll rise, oh, oh
We’ll riseI’ll rise up
Rise like the day
I’ll rise up
In spite of the ache
I will rise a thousand times again
And we’ll rise up
High like the waves
We’ll rise up
In spite of the ache
We’ll rise up
And we’ll do it a thousand times again…”

You get the idea… and a few of my favorites down further in the list…

15. “The Comeback” Danny Gokey

“…There is no mountain you can’t face
There is no giant you can’t take
All of your tears were not a waste
Your one step awayJust when they think they’ve got you game set match
Oh here comes the comeback…”

23. “Fight Song” Rachel Platten

“…This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me…”

29. “Good To Be Alive” Meghan Trainor

“…It feels good, don’t it?
Living your life in this quick moment
And you never ever think it’s gonna go away, but I swear
I know you’ll wake up one day and say
Yeah, I got things to do (you’ll say)
Yeah, I got mountains to move
And it ain’t about how sad it could be
It’s about how good it should be
Come on, sing…”

32. “Let it Be” The Beatles

“When I find myself in times of trouble, Mother Mary comes to me
Speaking words of wisdom, let it be
And in my hour of darkness she is standing right in front of me
Speaking words of wisdom, let it be…”

35. “Defying Gravity” (Wicked) Idina Menzel and Kristin Chenoweth

“…I’m through accepting limits
‘Cause someone says they’re so
Some things I cannot change
But ’til I try, I’ll never know!
Too long I’ve been afraid of
Losing love I guess I’ve lost
Well, if that’s love
It comes at much too high a cost!…”

40. “Colors of the Wind” (Pocahontas) Judy Kuhn

“…You think the only people who are people
Are the people who look and think like you
But if you walk the footsteps of a stranger
You’ll learn things you never knew, you never knew…

How high does the sycamore grow?
If you cut it down, then you’ll never knowAnd you’ll never hear the wolf cry to the blue corn moon
For whether we are white or copper skinned
We need to sing with all the voices of the mountain
We need to paint with all the colors of the windYou can own the Earth and still
All you’ll own is Earth until
You can paint with all the colors of the wind”

42. “Do Something” Matthew West

“…I’m so tired of talking about
How we are God’s hands and feet
But it’s easier to say than to be
Live like angels of apathy who tell ourselves
It’s alright, “somebody else will do something”
Well, I don’t know about you
But I’m sick and tired of life with no desire
I don’t want a flame, I want a fire and
I wanna be the one who stands up and says
“I’m gonna do something”…”

45. “Magnify” We are Messengers

“…God be greater than the worries in my life
Be stronger than the weakness in my mind
Be louder let your glory come alive
Be magnified…”

51. “Stand By You” Rachel Platten

“…And oh, truth I guess truth is what you believe in
And faith, I think faith is having a reason
And I know, know love, if your wings are broken
Borrow mine so yours can open too’Cause I’m gonna stand by you
Even if we’re breaking down
We can find a way to break through
Even if we can’t find heaven
I’ll walk through hell with you
Love, you’re not alone
‘Cause I’m gonna stand by you…”

This one was added recently after Meghan brought it to me. It seems she has been paying attention to her father and I all these years….

56. “Like My Father” Jax

“…I need a man who loves me like
My father loves my momAnd if he lives up to my father
Maybe he could teach our daughter
What it takes to love a queen
She should know she’s royaltyI need a man who’s patient and kind
Gets out of the car and holds the door

I wanna slow dance in the living room like
We’re 18 at senior prom and grow
Old with someone who makes me feel youngI need a man who loves me like
My father loves my mom

I need a man who loves me like
My father loves my mom…”

So, with few words of my own, and many from talented musical artists, we remain

#beatingcowdens

Photo Credit Natalie Licini http://www.jerevele.com

Grandma – The Long Goodbye

Real life continues around you whether you want it to or not.  And over the last few years as we have juggled Cowden’s Syndrome, my dear Grandma has battled Alzheimer’s Disease.  This disease is far too common and not for the faint of heart.  When it was named “The Long Goodbye”  it was appropriately so.  That goodbye came to its end for my Grandma last week, and her “Celebration of Life” was today.  Her influence on my life can not be understated. 

While I am acutely aware how lucky I am to have had my grandparents for so long, there is a special kind of loss when you’ve been fortunate enough to have grandparents into adulthood.  Below is a transcript of the eulogy I delivered today.  Pictures were just added for good fun.

It has been so hard to gather my thoughts.  I love to write, but it is a formidable task to speak to the end of an era, while teasing apart the pair that was “Grandma and Pop,” in order to spend a few moments remembering Grandma.

Grandma was small and strong, faithful, feisty, loyal, fierce, firm, and dedicated.

Besides being “small,” which is a ship that sailed for me decades ago, I aspire to be like my grandmother.  Sometimes she said very little, but what she said was always full of meaning.  And it was not the fluffy philosophical stuff.  It was straight to the point.  You always knew where you stood with Grandma.

I grew up on the first floor of the two family house they resided in for over 50 years.  I spent some formative years there, from 5 to 15, where I was loved unconditionally and held to a high standard all the time.  Those years shaped my character, and I will be forever grateful.

I can remember learning to keep myself busy, sorting buttons from a glass jar, while I sat on the kitchen floor.  I remember watching Grandma cook, and iron – two things I DEFINITELY did NOT pick up from her.  I remember tasting cookies, and waffles, and the best lemon meringue pie I’ll ever eat.

She was active her whole life.  She took walks all around the neighborhood for many years.  I watched her climb up and down the two flights of stairs to the basement to do laundry, and up again into the attic to get whatever was stored in their “pantry”.  That attic had a pantry that could have helped the block survive a natural disaster.  They were always prepared.

I remember fighting with my sister Lisa, back when it was just the two of us.  I remember being scolded, firmly (and we’ll leave that there..) and being told we needed to look out for each other.  Now we are more grandchildren, and great-grandchildren too.  I remember.  And we will.  We all will.

I remember the times I disappointed.  Thankfully, there weren’t too many, but there is one that I remember like it was yesterday.  Goodness, it must have been almost 40 years ago when I was touching the nativity scene that I had been told to keep my hands off.  I knocked over the donkey and his ear fell off.  Grandma was mad.  And, even after Pop glued the ear back on I saw that ear for the rest of the years that the nativity went up.  Grandma never said another word about it after that day.  No doubt she forgave me.  But, that feeling of disappointing her was not one I ever desired to relive again.

I remember playing card games with Grandma.  I can remember Parcheesi a little, but it must not have been my favorite.  What sticks out in my mind are “King’s Corners” and “500 Rummy”.  I learned so much more than the rules of the games.  I learned that Grandma was not about giving away easy wins.  I learned that if you wanted to win, you had to work for it.  I also learned that sometimes you lose.  And, being a gracious loser is probably more important than winning.  Life lessons.  Thanks Grandma.

I learned how to be frugal after learning all about the Great Depression and the stories of truly having nothing at all.  She didn’t share those stories to garner pity.  She shared them as an explanation.  She shared them as a motivation as well, although she may not have realized it.  You see, I learned that sometimes people have absolutely nothing, and it’s just not their fault.  I learned to work hard, establish a reputation, and to give with a giving heart, with no expectation of return.  I was given gifts.  Through the years I received many material gifts, but the ones forever etched in my heart are the emotional gifts, of love, support, and encouragement.

For years I learned the value of being able to kiss my grandparents goodnight.  Our family was not super-affectionate, but still, there was a lot of love.  And, so much love came from those goodnight kisses, that I still remember today to ALWAYS kiss my family goodnight.  I learned that there is no promise of tomorrow on this earth, and I watched for years as Pop stopped to kiss Grandma goodbye before he left the house for any reason.  It was in those moments I promised myself I would settle for nothing less than a man who loved me the way Pop loved Grandma.  I did not settle Grandma.  And I understand the beauty of loving and being loved.

The days are sometimes long, but the years are short, and our family grew.  And as each generation brought more love into her heart, I understood the value of what we had.  I understood it, and tried to soak it up every chance I had.  Most people are not as fortunate as we have been.

Family Christmas 2015

Grandma’s mind started to give her trouble many years ago.  No one talked about it much.  We just quietly noticed.  Although, I suspect none of us noticed as much, or as soon as Pop surely did.  Maybe it was the depth of his love that motivated him to care for her alone for so long as she slipped away.  I don’t think we’ll ever fully understand, but it was remarkable.  A love story like theirs is almost unheard of in this generation.  It spanned time and space and well over 70 years.

And when the day came that Pop was no longer to be with us, Grandma gained residence in Clove Lakes Nursing Home.

For almost two years the staff of 6A got to know her.  They don’t have an easy job.  You have to have a special heart.  But, they do it with compassion and integrity.  They took the days she lashed out in stride, and sat and talked to her on the other days.  They learned of a woman, who even with a “broken filter” loved God, her husband, and her family.

Some time around Thanksgiving, Grandma stopped eating solid foods.  And although she would, at the start of it, take some Ensure, slowly she transitioned to an all Ginger Ale diet.  And, if you ever bad mouthed Ginger Ale, I’d like to tell you to consider it’s life sustaining properties.  Grandma lived well over a month on Ginger Ale!

For only the last two weeks or so, Grandma spent most of the day in her bed.  It was more comfortable for her thin, weakening frame.  And it was during those visits, Ginger Ale in hand, that we had some of the most remarkable conversations.

Long had passed the day when Grandma knew who I was.  I asked her one day if she knew me, and she gave me a crooked smile and shook her head.  She said simply, “but I know that I love you”.  And, that was quite enough.  I asked if it was OK if I called her Grandma, and she said, “yes”.  So, that was how we rolled.  It didn’t matter if she knew my name.  It mattered that her face brightened when I walked into a room.  The love was deep in her heart.

I started jotting down some of the things she was saying, so I’d have them to look back on, and I have to tell you, I had some good laughs these last few weeks.

Grandma was in her clearest voice saying the Lord’s Prayer one day very recently.  And as she said, “Lead us not into temptation,” she paused, opened her eyes, looked at me, and said, “That’s a bad one…” and proceeded to finish the prayer.  Right to the point.  I got it Grandma… don’t worry.

She prayed a lot those last few days.

She also asked for a bat one day.  Trust me, she had no interest in playing ball.  She wanted a bat to get after one of the most gentle aides on the floor.  Marlene laughed and never even paused while she carefully and lovingly repositioned Grandma.  I was in the room a few days later when Grandma told Marlene she loved her.  That was Grandma, right telling exactly what was on her mind – to the end.

She talked about Pop too.  One day she said during her prayers, “And my darling Ed, don’t forget him.  I bless him and I pray for him.  He’s my best friend.  He’s been my best friend a lot of years…”

She told me she “had a nice time”.  She talked about a trip that she initially didn’t want to take.  But, she came around.  She said, “I have to go with my husband and my chocolate”.  She said, “I have to trust”.  And she told me Jesus died so heaven was “guaranteed”.

The day she left us we played music for her.  With the help of the internet we pulled out her favorite hymns.  She couldn’t talk much, so we played, “My Jesus I Love Thee,” “Amazing Grace,” “What a Friend We Have in Jesus,” “I The Lord of Sea and Sky,” “Beautiful Savior,” “How Great Thou Art…” The list went on.  And, with each passing song she seemed to settle.  She fell into a peaceful sleep.  She was finally almost ready.

Grandma and Pop are back together again now.  I remember after Pop died, and Grandma could not really process his passing, the decision was made not to tell her.  We were told that there really was only a door between them, and the amount of time they’d be on opposite sides of the door was short, especially relative to the time they were together.

Truer words could not have been spoken.  And, as much as we will all miss them terribly, there are people who are just better together.  Grandma and Pop were two of those people.

 

Grandma’s passing marks the end of an era. In addition to being our matriarch, she was the last surviving of the 6 children in her own immediate family.

Grandma and Pop may no longer be here with us, but they leave behind children, and grandchildren, and great-grandchildren, and friends, each with personal, specific, life altering memories.

I have no doubt all the angel choirs are singing today.

I’ll leave you with the prayer Grandma said at the end of almost every Lord’s Prayer this week- “Lord, bless us and make us a blessing to others.  AMEN!”

December 30, 1945
                                     A love story that knows no end…