Waking up before the rest of my family on a vacation day – 2 cups of caffeine.
Filling the car with gas- $50.
Traveling through the Brooklyn Battery Tunnel $13 roundtrip.
Parking for 4 hours – $25.
Two doctor Copays $20 each.
Trip across the Verazanno Bridge… about $6 with my EZpass.
But, the news from the dermatologist that I can stretch the visits a whole year, combined with the news from the breast surgeon that “everything looks great and I will see you in 6 months!”
ABSOLUTELY PRICELESS!
So we cross small hurdles gleefully.
We had 7 appointments carefully scheduled for this week to avoid time off from work/school. Three doctors apparently realized last week they have kids at home and cancelled. So this concise week of appointments will stretch a bit, but I have begun scheduling the 11 doctors and 4 scans I can remember that are due in June/July.
I will do everything in my power to consolidate them.
Cowden’s Syndrome WILL NOT run our lives.
We are actively preparing for RARE DISEASE DAY…. (FEBRUARY 28th – Get your denim ready!)
Until Friday when we see the vascular surgeon about that pesky AVM…
beatingcowdens 