This is the story… RARE DISEASE DAY!

http://www.silive.com/northshore/index.ssf/2013/02/staten_island_9-year-old_and_h.html

 

Hopefully this link takes you to the full article.

Thanks everyone… and I mean all of you.

Lots of people were mentioned in here.  In reality our support network is much larger and includes people we will never meet.

Love you all!

Lori

One thought on “This is the story… RARE DISEASE DAY!

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