Miles to Go…

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September is a marathon of sorts.  Although all the training in the world can never quite prepare you for the twists and turns needed to navigate it through to completion.

September is establishing new routines, in my own classroom, and in our lives.  September is learning new students, and new teachers.

Each year, it is about pushing our bodies farther than we have ever been able to.  It is not just about surgical recoveries, or broken toes, it is about swim.  So much swim.  It’s about swim before sun-up, and afternoons too.  It is about drama and singing and doctors in between.  It’s about finding the inner strength to press on.

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It’s about balancing it all.  Work, school, after school, meetings, and the like.  It’s about stopping to find the beauty, and the sunrise, and the simple pleasures along the way.

This life, this chronically ill life is lonely.  I’m not going to lie, or even try to sugar coat it.  It is lonely.  But, we three in this house embrace and press on.  Because, really, there is no alternative.

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There is no fault, no anger, no resentment.  Reality is that every moment is spent using all the “spoons” we have to get through.  At this moment there are no extras.  Family and friends who comprehend will still be there with open arms when there is a “spoon” or two to spare.  The rest will have found their own way, and that is a loss we will have to take in stride.

Everyone has something.  All lives are busy.  All lives have joy, and angst.  All we can do is take what is in front of us and do the best we can with what we have where we are.

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The worry in my heart runs deep.  There is reason for it, yet I battle it all the time.  It can not, nor will it, define me, or our lives.  Regardless, it lingers always, lurking in the shadows.

My girl continues to amaze and impress with wisdom beyond her years.

For her birthday Meghan had a very specific request this year.  One of her gifts was, “The Unabridged Poetry of Robert Frost.”  I was familiar only with one of his most famous poems.  Meghan read this book fervently for most of August.  I think I understand why now.

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Lab work tomorrow to keep those thyroid hormones in check.  We need our strength to remain

#beatingcowdens

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