A REAL Love Story

love

I’m not one for Valentine’s Day.  Never was.  It didn’t matter to me if I was dating or single, it just never made sense.  The “Hallmark Holiday” seemed determined to bleed money out of people who shouldn’t have to work so hard to prove themselves one day a year.

If you love someone, prove it every day.  It’s not about the big things.  It’s about the things that matter.

Picking up someone else’s mess, doing someone’s laundry, a random hug, an “I love you” that’s real and spontaneous, treating each other respectfully all the time… and so on…

My husband and I decided years ago to exchange only cards on Valentine’s Day.  I already know how much he loves me.  We do what we can to get a little something for our girl, well, just because.  And we, we try to get organized and celebrate our anniversary.  The day we stood before God and our families and friends and pledged our “for better or for worse,” and “in sickness and in health.”  Because those vows – they matter so much.

Tomorrow I will head to Manhattan for three of my annual appointments, carefully timed to cost me exactly one day off of work.  I will see the oncologist, the breast surgeon, and the endocrine surgeon, with some blood work thrown in for good measure, and the results of a sonogram from Saturday checking on that bumpy spleen of mine.

I will return in time to have parent conferences at my daughter’s school.

Not a “romantic” day by any means.

I will wear a red shirt that says “Strong” and I will make it work with a smile.

Because, I will be thinking of this heart.

img_6210Last year in January, my Grandfather fell.  It was after a trip to the grocery store.  We later found there was stroke activity, and that January day began a slippery slope that ended with his passing on March 3rd.  If you know me personally at all, you know my grandparents were larger than life to me.  That’s it.  They were 70 years married, and even though Alzheimer’s had largely robbed Grandma of much of her memory, my Pop loved her with his whole heart.

Last year, coincidentally, my grandparents spent Valentine’s Day in the nursing home at the same time.  And, although I’m not totally sure either was aware of the date at the time, we were.

A few days after Pop passed, my uncle sent the picture above.  He was cleaning out the linen closet and tucked in between some things was this heart.  By every rational account it must have been purchased by Pop, for his love, on that day in January when he made his last shopping trip alone.

My Pop was a man that planned ahead.  He was a man who always thought of his wife, and lived every day loving her with his whole heart. And my Grandma, well, she’s pretty special herself, and she’s always been quite fond of chocolate.

Nothing flashy, nothing fancy.  But he saw the hearts early, and thought of her.  That’s how he rolled.  Always kissing her hello and goodbye, clipping roses from their rosebush, and doing what he could, even when there was nothing more he could do.

My newsfeed, and my heart have been full lately, of people struggling and suffering.  The prayer list is long.  There is pain and sadness and worry.  But within, there is also love, and gratitude and compassion.

Life is about balance.

I’d rather spread out the love to last all year.  I’ve got plenty to share.

For it is with love alone that we hold each other up.

Love for those around us, and those who’ve gone before, motivates us.

Grandma is still “here” but many of you understand when I say I miss my grandparents.  The love though, the love and the example they set is imprinted forever in my soul.

It is with Love and Gratitude that we find the strength to remain

#beatingcowdens!

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Thought for the day…

A friend of mine posted this on her Facebook page today.  She is the kind of person who every day finds something to be grateful for.  I love that about her.  Those are the people worth surrounding yourself with!

Today was the kind of day that could have gone either way.  Three doctors appointments back to back in ManhattanMeghan and Felix home together.  I was a bit bitter about wasting a day.

But I got a spot in my favorite lot, and got in a nice walk.  Then I met a new dermatologist who studied me very closely.  She KNEW what Cowden’s Syndrome was!  And, as she took my medical history about the breast cancer, and the hysterectomy, she said “you look awfully good for the year you’ve had!”  I had to smile.  She understood the rarity of Cowden’s well enough to call the resident in to look at my gums, and what I have come to learn are “classic” Cowden’s marks on my palms and feet.  The resident is studying melanoma specifically, so she let her “double check” and ask me all sorts of questions.  What a treat to not feel like a freak and be in a room with people trying to learn.  Even more of a treat to hear that all is well, and I don’t have to come back for 6 months. 

I made it to doctor number 2 – the endocrinologist with time to spare.  So, she took me early.  An exam, some conversation about the past few months, (through NYUs new system where all the doctors are linked,) some talk about a bone density test in the next few month, a script for blood, and an invitation to return in 6 months.  Wooohoo!  2 for 2!

Early for doctor number 3, the breast surgeon, I had to endure a bit of a wait.  She however, is THRILLED with my healing, and said I don’t need to see her for a year!  (We will do 6 months just so I stagger her with the plastic surgeon, one every February, and one every August – but still! :-))  She asked about my new oncologist, also an NYU doctor, who had contacted her to discuss my case.

Am I starting to feel like there is a competent team of doctors out there?

So, I made exactly the same appointment, same three doctors, February 19th.  How nice to come into the city once and park once, and get three done at once.  Maybe… just maybe… we can start to get our lives back, little by little.

I was home by 2.  Enough time to spend the rest of the day with my family.  Who cares that the black car doesn’t start.  We will take care of that another day…

When I saw that picture tonight I had to smile.  I could have had a really crappy day – but I didn’t.

Because I decided not to!

Persistence…

Photo came from Google.com

My daughter found this photo the other day.  She was searching “funny dog photos,” and stopped when she reached this one.  She came to me and said, “Mom, I think you will appreciate this.”

I don’t know whether I was more impressed by her ability to know that I would in fact get a good chuckle out of this, as it seems to be the story of our lives, or by the photo itself.

Ingenious really.  People do this.  They create these photos, and some seem silly or insignificant.  Until there is one photo, phrase or saying that you really relate to.  Then somehow it all makes sense.

As we turn the corner of summer into August, I know we still have a few weeks of vacation left, but I start to reflect.

School begins for me on September 4th, and for Meghan on September 6th.  When we share our summer vacation stories, what will we tell?

We snuck in some fun.  There were some play dates that were a blast.  There was a trip to the beach, even if only for a few hours.  There was swim class, and dance class too.  There were books galore – read just for fun – far after the three she “had to” read.

But this year there was no camp.  And it was strange.  I missed the schedule a bit, but it was a necessary break – for both of us.

Practical reasons wouldn’t have allowed much attendance at camp.  We were at too many doctors.

Darn Cowden’s Syndrome.  Check this, scan that, see this doctor, make sure that is ok.  Multiplied times two it could be a full time job.  But, since I have a full time job, that I missed an obscene amount of days from last spring while my body parts were being cut away – summer is for all the doctors that we can squeeze in.

Ironically, no one really answered too many more questions. 

Persistence.

Before the end of August Meghan will have had 8 (very productive) Physical Therapy sessions, 3 visits to the pediatrician, a trip to the vascular surgeon, the rheumatologist, the oncologist, the geneticist, the orthodontist, our “second” pediatrician, and she will have had an MRI and 2 sonograms.

I didn’t do so badly myself.  I will be able to boast 3 surgical follow up appointments, 2 trips to the dentist, a visit to a new oncologist, which leads to a visit to a GI doctor, and abdominal MRI, a dermatologist for a skin cancer screening, and a visit to the thyroid surgeon.

And those are just the ones SCHEDULED through the end of August.

Persistence.

Not sure where it will get us.  All these doctors.  I will get them on a nice schedule though.  Start to consolidate.  Double up days.  Next Tuesday I have 3 appointments in a row.  Why waste time?

They want us to add the cardiologist back in.  Just to be safe they tell me.  Everyone is so busy covering their own ***, they often miss the important stuff.

I get that the screening needs to be, and that it needs to be intense.  It could be argued that this intense screening saved my life.  But there is still such a need for doctors with a clue.  Doctors who care.  Doctors who connect the dots.

Persistence.

Although some days I feel like the dog, digging through the concrete… I do believe it will all pay off.

Actually, it already has.

So maybe it isn’t the “perfect” summer, but its a necessary one.  Me and my girl…. together.

Disney – 2009